Legal information

Medical and Educational Disclaimer

Effective: September 17, 2026

General education only

Living Forward With Sickle Cell provides general education, caregiver-support information, lived-experience perspectives, and advocacy preparation. It does not provide medical diagnosis, treatment, nursing care, medication instructions, laboratory interpretation, mental-health treatment, legal representation, or emergency triage.

Follow the individual care plan

Sickle cell disease affects people differently. Families should follow individualized care, pain-management, medication, and emergency instructions issued by the patient’s licensed healthcare professionals. Never delay or disregard professional medical advice because of general website or training information.

No clinical relationship

Using this website, attending a general session, or communicating with Living Forward does not establish a clinician-patient relationship. Sylvia Miller-Howell serves as a lived-experience family educator and advocate, not as a substitute for a licensed healthcare professional.

Hospital clinical oversight

Hospital partners retain responsibility for approving clinical content, emergency guidance, referral pathways, patient-care procedures, and privacy requirements. Local hospital instructions and the patient’s own medical team control over general program materials.

Nutrition and school information

Food, fluids, and routine discussions support general well-being and are not a prescribed diet or a claim that food prevents, treats, or cures a crisis. Information about Section 504, IEPs, attendance, or accommodations is general education, not legal advice. Eligibility and services require individual evaluation through the applicable school process.

No guaranteed outcomes

Participation does not guarantee fewer pain episodes, hospital visits, complications, absences, improved grades, eligibility decisions, or any other medical or educational result.

Contact

Questions may be sent to contact@blackzizapartners.com. Do not include private medical information in ordinary email.