Legal information

Privacy Policy

Effective: September 17, 2026

This Privacy Policy explains how BlackZiza Partners LLC, operating the Living Forward With Sickle Cell program (“Living Forward,” “we,” “us,” or “our”), handles information connected with this website.

Information you choose to provide

If you use the partnership inquiry form, the website prepares an email in your own email application. The form asks for your name, organization, professional email address, role or department, and message. The website does not currently save that form submission in a website database. Your email provider and ours may process and retain the message according to their own policies.

We may also receive information you voluntarily provide when you email, telephone, register for a program, request materials, enter into an agreement, or communicate with us in another way.

Technical information

Our hosting and technology providers may automatically process limited technical information needed to deliver and protect the website, such as IP address, browser or device type, requested pages, timestamps, diagnostic data, and security events. We do not currently use advertising cookies or sell personal information through this website.

How information may be used

• Responding to inquiries and arranging meetings;
• Preparing proposals and administering requested programs;
• Operating, maintaining, securing, and improving the website;
• Keeping appropriate business and transaction records; and
• Meeting legal, regulatory, contractual, or safety obligations.

How information may be shared

We may share information with service providers that support hosting, email, communications, scheduling, document delivery, security, or professional services; with a hospital or organization when necessary to administer a requested engagement; when required by law or legal process; to protect rights, safety, and security; or as part of a business reorganization or transfer. We do not sell personal information collected through this website.

Health information and HIPAA

This public website is not designed to collect protected health information and should not be used for clinical communication. BlackZiza Partners LLC is not representing that this public website is a HIPAA-compliant patient portal. If we later provide services to a hospital involving protected health information, the applicable written agreement, the hospital’s privacy procedures, and applicable law will govern that separate activity.

Children’s privacy

This website is directed to hospital professionals and adults seeking program information. It is not directed to children under 13, and we do not knowingly request personal information directly from children through this website. A parent or guardian should contact us on a child’s behalf. If you believe a child provided personal information, contact us so we can review and delete it when appropriate.

Retention and security

We retain information only as reasonably necessary for the purposes described above, our legitimate business needs, and legal obligations. We use reasonable administrative and technical measures, but no email or internet transmission can be guaranteed completely secure.

Your choices and requests

You may ask us to review, correct, or delete personal information you provided, subject to legal and record-retention requirements. We may need to verify your identity before completing a request.

External websites

This website may link to third parties. Their privacy practices are governed by their own policies, not this one.

Changes and contact

We may update this policy as the website, program, or legal requirements change. Questions and privacy requests may be sent to BlackZiza Partners LLC at contact@blackzizapartners.com.